Phineas and Ferb Live Show Ticket Giveaway

http://www.iamthatlady.com/2011/10/26/23038/comment-page-1/#comment-23010

A lady that I follow for couponing is giving away Phineas and Ferb live show tickets. I thought everyone with kids would enjoy trying to get the tickets. I know ethan really wants to go so thought i would share :)

Moving Blog to New Site

I have been informed about caring bridge which is a wonderful site for people that want to share there journey through a difficult time... its blogging just like this site but i can put up multiple pictures everyone can sign the guestbook and at the end when Chloe is done with this journey in her life i can get a copy of the blog including the journal, guestbook and pictures bound in a hard copy book which is wonderful.

Here is the blog: http://www.caringbridge.org/visit/updatesonchloe/journal

You might get notice a couple of time. I apologize because I will be sending out e-mails of the change as well.

I would love to see everyone sign the guestbook so when Chloe grows up and sees her book she can see all the love support everyone has given to us... thanks so much to everyone!!!

Bands playing for Chloe this Weekend

I just wanted to say thank you so much to everyone for their love and support. We could not get through this horrific time with out all of you. I can't say thank you enough. As many of you know, Travis has been in various bands forever and some of his old band friends wanted to put a concert together for Chloe. It is going to be this weekend at Monirae's in Pennellville. It is $5 to get in. Malachai, Bleed the Soul, 10 to midnight and last call will be playing. They are going to have a 50/50 for Chloe and there will be some merchandise for sale (bracelets and ribbons)...

Just wanted to spread the word and say thank you to everyone that put this together for Chloe!!!

Link to event is below:

http://www.facebook.com/event.php?eid=252838901416194

Update from Our Trip this Week

We headed back to Philly Tuesday and Chloe had her EUA at 7am Wednesday morning. I was a nervous reck the whole time she was in getting it done. Dr. Shield's came out and spoke to us and said everything looks good, no detached retina (thank goodness). So this was a very happy trip to Philly. Dr. Shield's says all of the tumors seem to be stable and no new seeds so Chloe is doing well!! We stopped by CHOP as well while we were down to give Dr. Leahey Chloe's MRI. Dr. Leahey is on vacation this week so as soon as she gets back we should be getting a call with the results of that as well.. all in all a good week.

Again thanks for all the prayers we truly appreciate everyone of them!!!

Going back to Philly Early

Well went to the ophthalmologist Wednesday to talk about patching and Dr. Merriam did an eye exam while we were there and wants her to wear glasses as well. So that should be fun, getting her to keep them on. While he was looking in her eyes her noticed that her right retina seems elevated?? I'm really not sure what this means and I did ask but he said he is not the specialist in her retinoblastoma so he was just going to call Dr. Shield's to let her know. Well I received a call from Dr. Shields about an hour after our appointment and stated she wanted us to come back down on the 7th of September instead of the 28th. We asked if we could change to the week before or after because Ethan starts Kindergarten and we have orientation on Tuesday with him the 6th and then his first day of riding the bus is the 7th and I really didn't want to miss that big moment.. he already feels left out enough... so they moved her appointment to 31st of this month.
We asked Dr Shield's assistant what she thought it could be but she said without Dr Shields seeing it they didn't really know but it might be nothing...
I'm so nervous because the right eye is her "good" one... ugh... I will keep everyone updated when we know more. She goes next Friday for her MRI because they want it done before we go back down... She has been through so much I just want to be in her place in stead of her she doesn't deserve all of this...

Video

I could not figure out how to upload the video to Chloe's blog of the nurses singing her "Happy Last Chemo" but I could figure out how to get it to upload to facebook. Here is the path to check it out if you would like to:
http://www.facebook.com/video/video.php?v=2157878020452

Thanks!

Last Round of Chemo!!!

This was our last round of Chemo!!! It was so cute the nurses at CHOP made Chloe a picture and sang "Happy Last Chemo" to her and Chloe was just smiling ear to ear... i have a video of it and if i can figure it out i will post it on facebook so everyone can see it. Her EUA with Dr Shield's went well this time around.. she wants us to make an appointment this month with Dr. Merriam here in syracuse to talk about patching her eye and Dr. Leahey wants us to go get a new MRI this month (Chloe will have MRI's every 6 months) just to make sure nothing is growing in the brain. So this will be a busy month.. good thing is instead of going every 4 weeks we don't have to go back down until mid - September.
This time has been pretty rough on Chloe though. She has gotten sick a lot this time around and is more cuddly (she is usually on the go 24/7) ... hopefully that part will end soon because i feel so bad for her.
I want to thank everyone for all the prayers we appreciate evey last one of them and we could not get through this with out them.
Just wanted to let everyone know as well that Travis' old band wanted to do something for us so they are putting on a all day concert at Monirae's, with multiple bands playing through out the day and I believe there will be a buffet you can purchase as well, on September 17th.. with proceeds going to Chloe. I will let everyone know more details as I know them...