Phineas and Ferb Live Show Ticket Giveaway

http://www.iamthatlady.com/2011/10/26/23038/comment-page-1/#comment-23010

A lady that I follow for couponing is giving away Phineas and Ferb live show tickets. I thought everyone with kids would enjoy trying to get the tickets. I know ethan really wants to go so thought i would share :)

Moving Blog to New Site

I have been informed about caring bridge which is a wonderful site for people that want to share there journey through a difficult time... its blogging just like this site but i can put up multiple pictures everyone can sign the guestbook and at the end when Chloe is done with this journey in her life i can get a copy of the blog including the journal, guestbook and pictures bound in a hard copy book which is wonderful.

Here is the blog: http://www.caringbridge.org/visit/updatesonchloe/journal

You might get notice a couple of time. I apologize because I will be sending out e-mails of the change as well.

I would love to see everyone sign the guestbook so when Chloe grows up and sees her book she can see all the love support everyone has given to us... thanks so much to everyone!!!

Bands playing for Chloe this Weekend

I just wanted to say thank you so much to everyone for their love and support. We could not get through this horrific time with out all of you. I can't say thank you enough. As many of you know, Travis has been in various bands forever and some of his old band friends wanted to put a concert together for Chloe. It is going to be this weekend at Monirae's in Pennellville. It is $5 to get in. Malachai, Bleed the Soul, 10 to midnight and last call will be playing. They are going to have a 50/50 for Chloe and there will be some merchandise for sale (bracelets and ribbons)...

Just wanted to spread the word and say thank you to everyone that put this together for Chloe!!!

Link to event is below:

http://www.facebook.com/event.php?eid=252838901416194

Update from Our Trip this Week

We headed back to Philly Tuesday and Chloe had her EUA at 7am Wednesday morning. I was a nervous reck the whole time she was in getting it done. Dr. Shield's came out and spoke to us and said everything looks good, no detached retina (thank goodness). So this was a very happy trip to Philly. Dr. Shield's says all of the tumors seem to be stable and no new seeds so Chloe is doing well!! We stopped by CHOP as well while we were down to give Dr. Leahey Chloe's MRI. Dr. Leahey is on vacation this week so as soon as she gets back we should be getting a call with the results of that as well.. all in all a good week.

Again thanks for all the prayers we truly appreciate everyone of them!!!

Going back to Philly Early

Well went to the ophthalmologist Wednesday to talk about patching and Dr. Merriam did an eye exam while we were there and wants her to wear glasses as well. So that should be fun, getting her to keep them on. While he was looking in her eyes her noticed that her right retina seems elevated?? I'm really not sure what this means and I did ask but he said he is not the specialist in her retinoblastoma so he was just going to call Dr. Shield's to let her know. Well I received a call from Dr. Shields about an hour after our appointment and stated she wanted us to come back down on the 7th of September instead of the 28th. We asked if we could change to the week before or after because Ethan starts Kindergarten and we have orientation on Tuesday with him the 6th and then his first day of riding the bus is the 7th and I really didn't want to miss that big moment.. he already feels left out enough... so they moved her appointment to 31st of this month.
We asked Dr Shield's assistant what she thought it could be but she said without Dr Shields seeing it they didn't really know but it might be nothing...
I'm so nervous because the right eye is her "good" one... ugh... I will keep everyone updated when we know more. She goes next Friday for her MRI because they want it done before we go back down... She has been through so much I just want to be in her place in stead of her she doesn't deserve all of this...

Video

I could not figure out how to upload the video to Chloe's blog of the nurses singing her "Happy Last Chemo" but I could figure out how to get it to upload to facebook. Here is the path to check it out if you would like to:
http://www.facebook.com/video/video.php?v=2157878020452

Thanks!

Last Round of Chemo!!!

This was our last round of Chemo!!! It was so cute the nurses at CHOP made Chloe a picture and sang "Happy Last Chemo" to her and Chloe was just smiling ear to ear... i have a video of it and if i can figure it out i will post it on facebook so everyone can see it. Her EUA with Dr Shield's went well this time around.. she wants us to make an appointment this month with Dr. Merriam here in syracuse to talk about patching her eye and Dr. Leahey wants us to go get a new MRI this month (Chloe will have MRI's every 6 months) just to make sure nothing is growing in the brain. So this will be a busy month.. good thing is instead of going every 4 weeks we don't have to go back down until mid - September.
This time has been pretty rough on Chloe though. She has gotten sick a lot this time around and is more cuddly (she is usually on the go 24/7) ... hopefully that part will end soon because i feel so bad for her.
I want to thank everyone for all the prayers we appreciate evey last one of them and we could not get through this with out them.
Just wanted to let everyone know as well that Travis' old band wanted to do something for us so they are putting on a all day concert at Monirae's, with multiple bands playing through out the day and I believe there will be a buffet you can purchase as well, on September 17th.. with proceeds going to Chloe. I will let everyone know more details as I know them...

5th Round and 1 More to go!!

Ok well this time has not been to bad ... Chloe has not gotten sick at all and her mood is fairly good for what she goes through here. We went to her EUA yesterday which our appointment was at 10am and we never left Will's Eye until 3pm.. because of that we had to rush over to CHOP in order for them to still have time yesterday to get her 1st day of chemo started but we made it! 
At Will's Dr. Shield told us that the tumors in her right eye are not shrinking any more and she thinks there at the size they will always remain she believes and the tumor is about 3cm from the central vision but she feels pretty good saying that she will more than likely have 20/20 in the right eye... they did discover a new seed growing in her left eye and they did cryo treatment on it, the fluid has decreased a lot since last treatment as well in the left eye which is good.. Dr. Shield's told us that she believes Chloe will be able to see out of the top half of her eye in the left. I also asked the question this time of the likely hood of after the last treatment of new seeds coming back she told us 1 in 5 chance so it is likely that she may have more seeds but hopefully they will catch them before they are to large or to many to laser out... Dr. Shield's said they will laser up to 10 new seeds at a time any more than that she will have to discuss other procedures...we will still come down every 6 weeks or so for an EUA even after cancer so that she can catch the seeds if new ones form... so needless to say we have a long road ahead still and those days of EUA's will be very difficult ones for us but everyone has been so great in supporting us..
We have met another couple from Utica, NY while down here and exchanged information so we could keep in touch... we wish them the best of luck as well... definetly nice to know people that are going through the same things you are... this trip has been extremely overwhelming for me for some reason.. not that anything has gone wrong just really could use a vacation this year LOL ... that's not happening with the time i have taken off for the travel back and forth from Philly but me being tired and overwhelmed i would do a thousand times more to help my baby girl.. she is amazing :)

4th Round Not so Good

Well we had to come down here this round on Ethan's birthday so we decided to bring him with us. The past couple of times we have been down they have gone smoothly but of course this trip has been anything but smooth unfortunately. We went to Will's Eye Wednesday morning to get Chloe's cryo at 7:30am and then when we were done there we went straight to CHOP for her chemo and got back to Ronald McDonald House around 7pm. Even though it was a really long day Ethan did great. All of a sudden around 11:30pm Chloe started not feeling well. She got sick, which is normal and then we put her back to bed after cleaning her up. Then she got up again around 12:30 and again at 3am getting sick. At that point she seemed warm so we took her temp and it was 103.7 so we called the overnight number for the on call doctor and waiting for a half hour for them to call and they did not. She got sick again at 4:30am and took her temp again and it was 104.2 so we called again and of course we did not get a call back again and I just decided we needed to pack up and get to the hospital. When we got to the hospital her temp was 104.5 and they gave her tylenol to help and immediately admitted her to the hospital.
So needless to say we have been in the hospital since early thursday morning with poor Chloe. They did a lot of tests on her including blood work, x ray and urine samples. Everything came back negative so they are assuming it is just a GI virus and it has to run its course. The doctor had decided because of the fever and her sodium being dangerously low they would not give her the second round of chemo on Thursday. They explained with her sodium low and then if they gave her chemo she could possibly have a seizure so they did not want to take that chance. They have had her hooked up to fluids with sodium since yesterday and she is still hooked up. Her sodium is back up so we are now waiting for her chemo to be delivered so we could give her the second day of chemo (it's 8pm friday night).
Needless to say this trip has not been good and instead of leaving early friday morning as usual we are still in Philly in the hospital and not sure when we will be leaving. Through all of this though Ethan has been great and wanting to help out Chloe. I just feel so bad for her, she has gone through so much I so badly just want to take her place. :(

Round 3 is done!

This trip I think has been the hardest of all the trips so far.. Chloe was sick and the EUA she got from Dr. Shield's this time cause her eye to swell. She still looks like someone punched her in the left eye, she can't even open it up. Feel so bad for her... but she is so strong ...

On a good note she turns 1 on Monday!!! I can not believe she is 1 already it's crazy... but I am so proud of her she doing great with life has thrown her way and I'm glad I found a support group for Rb moms and I think that will be helpful for me in coping with everything...

Rough Day

We had to be at Wills Eye at 7:15am this morning and did not end up leaving there to head over to CHOP for chemo until 1:00pm. Dr Shield's says she believes chloe will have 20/20 vision in her right but her left eye is still full of fluid it may take 6 months to get rid of or it may never clear out of the eye. If it does not clear out then she will not have very good vision out of the left eye and I asked and they will not go in and remove the fluid. With her right eye getting so strong she said we will start to see the left eye getting "lazy" after all the chemo is done they will give us a patch she will need to wear on her good eye to make her use the bad eye to strengthen it. Dr. Shield's said the cancer seems to be almost gone from both eyes what is remaining of the tumors is non cancerious which is great news... I am still sad a little that it does not sound good for her left eye but i'm going to be optomisitc... they had to give some other special medicine while doing the cryo today so she has to keep a patch on her eye until tomorrow night.
When we got to CHOP for chemo she was not happy and half way through chemo they gave her some morphine for the pain. We got done with chemo around 6pm so it has been a very long day and we are all very tired. I will get back on here tomorrow and update everyone on how she is doing.

3rd Round Begins

Well we made it to Philly and met with the doctors today that will take care of Chloe. Her normal doctor is not around this week, she is on vacation. Dr. Philips is the one she will see this week and he seems very nice.

I will try to everyone up to date on what is going on this week while we are here.

To get everyone up to speed on the horrible week we had last week. The cellar flooded at my parents so we had to move everything out of our apartment and moved into a camper for the week while we cleaned and dried it up in our apartment downstairs. It should be all set by the time we get home. Then saturady Travis went to work and worked then was told he was fired. Perfect timing right?? His company Direct Reconditioning was so kind to let him go with no explanation of why to put the icing on the cake we called yesterday to make sure everything would be ok with our health insurance (our insurance was through his work) to find out "coincidently" his benefits ended the same day they let him go. So yesterday needless to say was a very emotional day and I had a slight panick attack. One day before leaving for Philly we find out we do not even insurance to cover out trip i ran around with my head cut off and had to make a lot of calls because my HR person was on vacation but we did get insurance through my work and should have everything set. I am still extremely extremely upset with his old company I don't know how another human being can do that to someone honestly... knowing we would be leaving in one day to get treatment for our baby girl and knowingly fire him on the last day of the month so we would not have benefits. They are scum bags in my mind and I don't know how someone can sleep at night knowing they did that to a hard working person. They knew what they were doing too because i had trav give me one owners number and talked to him about getting COBRA and he said oh we already spoke to our benefit rep and told we did not have to provide COBRA.. WHO does that knowing that someone is depending so much on those benefits... I just don't understand.. sorry for venting but thought everyone should know what kind of company they are and hope if anyone was thinking about doing any work with them they won't anymore... I wouldn't want to do work with a company that does that to their employees.

Our 3rd Trip!

Well I have not been on in a while to keep everyone up to date. Our 3rd round of treatment will begin next week. She has had a little bit of pain with the second round but not to much and she still takes it better than i could. She still smiles and laughes all the time. We are so proud of her, she is such an amazing little girl!

When we get down to Philly on Tuesday I will update the blog to let everyone know if the tumors have shrunk at all and all that information. Until then just want to say thank you so much again to everyone for your love and support. We don't know what we would do without all of you. xoxoxo

Walk A Thon

All I can say is Thank you so much!!! I could not believe how many friends and family we have and the love and support. It's amazing and wonderful to know we live in such a great community that comes together and Travis and I thank everyone for coming out to support us. It ended up being a great day!

Update on Chloe: She is doing well. This round of chemo she has been getting sick more but even when she gets sick she just smiles and laughs two seconds later. She is strong and i'm so proud of her, she is doing great.

Again thank you so much we love you all and cherish that we have so much support. It truly makes this situation better, thank you, thank you, thank you

Update on our Second Round

Chloe has been doing pretty well this time around so far... although she did get up last night around 3am and was sick for about an hour. We have to stay one more night so she can get her shot in the morning and then we will be heading back home tomorrow. Chloe's benefit is on Saturday and we can't wait to see everyone. Thanks for everyones' love and support it means so much to us...

Round 2 of Chemo Begins Tomorrow

We made it to Philly tonight. We were a little nervous because we tried to get in the Ronald McDonald House but had to wait till this morning to find out if we actually had a room or not. They called and we did get a room and can I tell you this place is really great for families. I unfortunately never gave them a thought before having to use one put people are so kind and to get to see other families in our situation and to get to talk them is nice. I am definetly volunteering when I get back to Syracuse!

I will keep everyone posted on how things go this week. Tomorrow we have to be at Chloe's chryo appointment at 6:15am and then chemo starts at 2:30pm...

Round 2 Begins next week...

We are heading to Philly again April 5th for our 2nd round of treatments. We will leave the night of the 5th and her chryo treatment will be in the morning of the 6th. Unfortunately our insurance company is not being very friendly and refuses to let her get her treatment done by the specialists that actually know what is going on with my baby.. so we have to go to Philly for the chryo treatment (because this procedure is done only in 3 places in the US and Philly is the closest to us) and then we have to drive immediately back so we can get her chemo done here in Syracuse. The specialist in Philly has to send the doctor here the treatment plan and how to administer what Chloe needs which does not make me happy that we have to have someone that does not specialize in Retinoblastoma administer the chemo treatments. On top of that the last chryo treatment did not go very well. Chloe stopped breathing and then was screaming in pain after and had to get morphin from the onocologist. So if we are traveling back this time that means she won't be able to have morphin if she is in pain again... so frustrating ... insurance stinks and doesn't care about the individual. They are making a difficult situation even worse... thanks New York State!!

Good Articles

 A lot of friends and family want to know more about what retinoblastoma is so here are some articles that you can read. Chloe has germinal retinoblastoma and hers it bilateral.

http://ghr.nlm.nih.gov/condition/retinoblastoma

http://www.eyecancer.com/Patient/Condition.aspx?nID=53&Category=Retinal+Tumors&Condition=Retinoblastoma

Benefit on April 9th, 2011 for Chloe

Just wanted to put the information on chloe's blog for the benefit that my mother in law is doing for Chloe.

Walk A Thon on April 9th @ Mexcio High School Track, starts 12pm
T-shirts and wrist bands will be for sale.
After the walk we will go over to the high school gym for a benefit.
We have had some great donations for the benefit that will be raffled off, to list some of them:

- 4 VIP New York Yankees
- Boy Bicycle
- Girl Bicycle
- 32" Flat Screen TV
- 4 free oil changes
- gift certificates for various place
- scratch off board
and much more....

There will be a bake sale and food and drinks after the walk at the benefit as well...

I just want to say thank you so much to everyone that has been helping and that want to help we really appreciate it. The amount of prayers and caring people that have been keeping our spirits up is overwhelming and we are so appreciative...thank you to everyone!!!

Event Posted on Facebook

We have had a lot of people asking about the walk a thon and benefit so my sister made an event page on facebook. Click on Link to see it! http://www.facebook.com/#!/event.php?eid=105865526163096

Shot Day

Today went well ... we went and picked up Chloe's shot that she needs to have after her Chemo treatments (this shot helps her white cell count stay up) and then went over to the doctors and he gave the shot to her and checked her blood counts and they all are good. He said they usually see a drop after 14 days after the chemo so hopefully at that time they do not drop to low. She did drop a pound and a half which I didn't like hopefully her appetite comes back soon...

Back Home

We are so happy to be back home and be able to see Ethan. We really missed our family and friends. Chloe is doing pretty good she doesn't haven't much of an appetite but we have medicine that is suppose to be helping that.. she hasn't gotten sick at all so that is good. We go tomorrow to our pediatrician to get a shot that will help Chloe so that her white cells will not dip to low... and then it is back to work on Tuesday until our next trip to Philly.

I am really nervous to leave Chloe on Tuesday. I know she will be with my sister but there is so much to watch for and all she wants is me.. it will be fine just hard...

I wanted to also say thank you to my mother in law, her friends and my sister for putting together a walk for Chloe. I know they have been working hard to put it together and it means so much to us... thank you.

We are Home!

We are finally home!

First round done, five more to go... Chloe did well yesterday with her 2nd day of chemo. She has not gotten sick yet which is good ... it is kind of overwhelming though... it's not just ok we did our 2 days of chemo and we are good till the next itme we go back to Philly ... she has 3 different medicines that we need to give her... she has to get her blood levels taken each week... we have to be careful she is not around anyone that is sick so we will have hand santizare around all the time... any fever above 101.4 it's straight to the hospital... we have to watch her eatting habits, her getting sick and they said by the end of the 2nd round of chemo she will probably lose her hair.

So much to take in but we are doing it and Chloe is doing well, which is the most important thing. I just want to say thank you so much for everyones support and love we could not get through this without the support it means so much to us..

Long Day

Today was suppose to be the first day of chemo but the doctor here had to fight with the insurance company all day to let us have the chemo treatments through the children's hospital of philadelphia. She got it approved and then they could not get a good vein in Chloe. The poor girl got poked about 8 times yesterday when she was but under and so it made it hard for the nurses here. They tried four times and decided she needs to have a port put in for her treatments her veins just are to hard to find and in case during the treatments she needs an emergency transfusion they don't want any complications. Poor girl, now she will have a port in her chest for the next 6 months on top of everything else.

So they are admitting her to the hospital tonight and she will have surgery tomorrow for the port they are hoping she will be done with the port and can start treatments by 8pm because if she is done with her 1st treatment by midnight they will let her have her 2nd on on friday if not then we need to wait to have the 2nd treatment on saturday and then stay the following day to have the special shot they give after chemo... so we will not be returning until saturday possibly sunday possibly monday....

I just hope the ansthesia this time goes more smooth than yesterdays did.... so we will be spending the night at the hospital tonight and if we get any more information I will let everyone know.

Scary Day

Today was a true eye opener as to what will be going on in the next couple of months. We had to go to the eye specialist at 10am and Chloe went under anesthesia so the doctor could do a "chryo" treatment which is the doctor freezing the eye before each chemo treatment she recieves. They brought us back to a private room after the procedure so the doctor could tell us what she saw. Chloe has 2 tumors in the right eye at a grade C and has 5 tumors in her left eye at a grade D. They grade cancer from A to E ... so after that the doctor said they would be in shortly to get us and bring us to Chloe. A hour and a half later the doctor came in to tell us that there was a complication when Chloe was coming out of the anesthesia and she stopped breathing for a little bit and they had to resesitate her... I obviously lost it and they let us go back to see her so we knew she was ok but we had to go back and wait in the waiting room for her to be done with her breathing treatment to see her. When we saw her she looked not even like herself they inject a dye that makes her skin have a yellow tint and her little eyes are so swollen she could barely open them and we had to keep talking to her because she was having a hard time waking up...

Then we went over to the onocoligist at the Children's hospital to meet her specialist there and to go over what will be happening. Chloe will be getting a high dose of chemo, she may get sick, she may lose her hair, we have to be careful with her being around others because she will be acceptable to infections and getting sick... and any sign of a fever we need to go to the hospital immediately...

So the plan for the next six months is to go to Dr. Dracker in syracuse to get her signed off to have anesthesia, then go to eye doctor to get her chryo treatment done to her eyes, then 2 days of chemo and then we need to stay the day after so she can have a special shot that will keep her blood levels from dipping to low. So we will have to take a week off each month for the next 6 months. In between treatments she needs to get her blood taken each week. After treatments are all done she will need to come see the eye specialist every 3 months just so they can check and make sure no new tumors are forming..

I am so happy that in the end we will have our little girl and she will have some if not all of her vision but I am so so sad for what she will be put through the next couple of months. I just feel so bad for her but we are trying out best to be very strong for her...

Going Under Again

Poor Chloe has to get anesthesia again today. They said she can not have anything to drink or eat after midnight and her appointment is not until 10:15am so I would add at least a half hour to that until she actually is in and ready probably. My poor girl, it's 7:50am and she already keeps saying ba ba ba ba ... not going to be a fun morning.

We meet with the specialist that will give us more information on the chemo treatments today also so we know more of what will be happening with the procedures as well... I will keep everyone posted as soon as I know more.

Our Day with the Specialist

Today was a long day, we met with Dr. Shield's at Wills Eye Center. It was hard to see all the test they had to do on her today but all the doctors were great with her.

Dr. Shield's diagnosis is she definetly has retinoblastoma in both of her eyes. The left is worse than the right and they have decided that chemo therapy is best for her situation. She will be going through 6 treatments. The treatments will be for 2 days once a month. So we will be visiting Philly once a month at least until August. But the doctor seemed very optomistic in saving both eyes. With the left as bad as it is she is not sure about how well she will be able to see out of that eye but only time will tell... so we have a long journey ahead of us but we are so happy that her life will be saved and she will be able to keep both of her eyes.

So tomorrow we will go to the doctors and they are putting under again to get better pictures of her eyes. Then they are going to try to get the chemo started tomorrow, if not, she will start it on wednesday.

I also just want to say thank you to everyone again on the support we have been given. It means so much to us more than we can say.

http://www.eyecancerinfo.com/

Travel Day

My mother had a brunch at the house this morning so that family could come over and see us before we left. Now we are getting ready to take our 5 hour trip... we will keep you all posted after we hear from the specialist tomorrow. Keep your fingers crossed for us that this will be the best possible news in our situation tomorrow... that's what we are hoping for.

Again thank you so much for everyones support it has meant so much to us...

Relaxing Day before our Trip

This has been so emotional... thursday i just was physical sick and shaking ... didn't sleep more than 3 hours in total.... yesterday i felt kind of numb... didn't cry to much... I had a good night sleep last night but then i just woke up crying and just feel very very sad again today... I think it's a lot of things in one today.

I don't want to leave Ethan tomorrow because we don't know when we will be back so that is hard.. we have to tell him what is going on and that we are leaving for a little while today that will be hard too... we are going to try and skype (never have done this) so if anyone knows how to and could help that would be great. I also want to get down there and see what the specialist have to say Monday and another part of me is so scared of what they will say too... ugh... this just is not fair I wish it was me and not my baby girl... but she is strong and has an awesome personality and we are trying to be strong for her...

Well we are off to go to breakfast to see our best friends jess and josh and then we have to go over to peditricians to get everything we need for our trip...

Thank You

I just wanted to say thank you so much to everyone. Michelle and Laura came over and dropped us off a "thinking of you" gift from some of our friends. We truly are so thankful and appreciate having everyone of you in our lives... thank you so much

Day 2

Wow.... still in shock I think... today was a really long day. We were at University Hospital for Chloe's MRI at 7:45am today and never left there until 1:30pm. Chloe did well it was hard seeing them put her under for the MRI but she is doing ok now, just a little sleepy.

We left the hospital went straight over to her pediatrician's office. Can I tell you if you have or your having children, Summerwood is just the best place for kids. Dr. Draker was so caring today and treated us as if we were family. Gave us all his personal information (e-mail, pager, home number, private number) and told us if we need him at any time to not hesitate to call. He said that he wants to be here for us no matter what. He set everything up with our insurance so we don't have to worry about that and he helped us find an efficiency hotel in Philly so we didn't have to spend money eatting out everyday. I am so thankful for him and his practice ... they are amazing...

Dr. Draker showed us the MRI and showed us the scans of her eyes. The right eye only has two specs on it so we are very hopeful with that one. The left eye is about half full with a tumor but he said he believes they will still try laser or chemo first before even thinking about removing the eye. So we are praying for good news on Monday that they are hopeful to save both of them.... ugh... this is just so stressful. But Trav and I will stay strong for our children and Chloe is strong so we will make it through this...

I wanted to say thank you so much for all the prayers we have gotten from family and friends... it truely means a lot to us...

So with that said. We will be taking off for Philly on Sunday and then hoping for the best news possible on Monday...

Getting the News

Well today we recieved the news at the eye doctors that our beautiful baby girl that is only 9 months old has a tumor in her eye. Not one eye but both eyes, this is called retinoblastoma, and from what we were told this tumor is cancerous. I have been on an emotional roller coaster today to say the least.

This can be heriditary so they made us have Ethan (our 4 yr old son) checked out as well. He is good thank goodness.

The next stop is to get an MRI tomorrow at university and then go to the pediatrician's office to discuss what will be happening and get information on what we will need to do. Then we have an appointment set for Monday at 7:45am at the Children's Hospital of Philadelphia to see the specialist and i'm praying so hard that this will be quick and as painless as possible for my baby girl...

I will keep posting here at least once a day hopefully so everyone that wants to know what is going on can keep up to date with what is happening. I know we have a loving family and lots of friends that are so supportive... we love all of you... please give us lots of prayers they will be much appreciated...

Thanks,

The Hewitts'