Well we had to come down here this round on Ethan's birthday so we decided to bring him with us. The past couple of times we have been down they have gone smoothly but of course this trip has been anything but smooth unfortunately. We went to Will's Eye Wednesday morning to get Chloe's cryo at 7:30am and then when we were done there we went straight to CHOP for her chemo and got back to Ronald McDonald House around 7pm. Even though it was a really long day Ethan did great. All of a sudden around 11:30pm Chloe started not feeling well. She got sick, which is normal and then we put her back to bed after cleaning her up. Then she got up again around 12:30 and again at 3am getting sick. At that point she seemed warm so we took her temp and it was 103.7 so we called the overnight number for the on call doctor and waiting for a half hour for them to call and they did not. She got sick again at 4:30am and took her temp again and it was 104.2 so we called again and of course we did not get a call back again and I just decided we needed to pack up and get to the hospital. When we got to the hospital her temp was 104.5 and they gave her tylenol to help and immediately admitted her to the hospital.
So needless to say we have been in the hospital since early thursday morning with poor Chloe. They did a lot of tests on her including blood work, x ray and urine samples. Everything came back negative so they are assuming it is just a GI virus and it has to run its course. The doctor had decided because of the fever and her sodium being dangerously low they would not give her the second round of chemo on Thursday. They explained with her sodium low and then if they gave her chemo she could possibly have a seizure so they did not want to take that chance. They have had her hooked up to fluids with sodium since yesterday and she is still hooked up. Her sodium is back up so we are now waiting for her chemo to be delivered so we could give her the second day of chemo (it's 8pm friday night).
Needless to say this trip has not been good and instead of leaving early friday morning as usual we are still in Philly in the hospital and not sure when we will be leaving. Through all of this though Ethan has been great and wanting to help out Chloe. I just feel so bad for her, she has gone through so much I so badly just want to take her place. :(
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