Scary Day

Today was a true eye opener as to what will be going on in the next couple of months. We had to go to the eye specialist at 10am and Chloe went under anesthesia so the doctor could do a "chryo" treatment which is the doctor freezing the eye before each chemo treatment she recieves. They brought us back to a private room after the procedure so the doctor could tell us what she saw. Chloe has 2 tumors in the right eye at a grade C and has 5 tumors in her left eye at a grade D. They grade cancer from A to E ... so after that the doctor said they would be in shortly to get us and bring us to Chloe. A hour and a half later the doctor came in to tell us that there was a complication when Chloe was coming out of the anesthesia and she stopped breathing for a little bit and they had to resesitate her... I obviously lost it and they let us go back to see her so we knew she was ok but we had to go back and wait in the waiting room for her to be done with her breathing treatment to see her. When we saw her she looked not even like herself they inject a dye that makes her skin have a yellow tint and her little eyes are so swollen she could barely open them and we had to keep talking to her because she was having a hard time waking up...

Then we went over to the onocoligist at the Children's hospital to meet her specialist there and to go over what will be happening. Chloe will be getting a high dose of chemo, she may get sick, she may lose her hair, we have to be careful with her being around others because she will be acceptable to infections and getting sick... and any sign of a fever we need to go to the hospital immediately...

So the plan for the next six months is to go to Dr. Dracker in syracuse to get her signed off to have anesthesia, then go to eye doctor to get her chryo treatment done to her eyes, then 2 days of chemo and then we need to stay the day after so she can have a special shot that will keep her blood levels from dipping to low. So we will have to take a week off each month for the next 6 months. In between treatments she needs to get her blood taken each week. After treatments are all done she will need to come see the eye specialist every 3 months just so they can check and make sure no new tumors are forming..

I am so happy that in the end we will have our little girl and she will have some if not all of her vision but I am so so sad for what she will be put through the next couple of months. I just feel so bad for her but we are trying out best to be very strong for her...