I have been informed about caring bridge which is a wonderful site for people that want to share there journey through a difficult time... its blogging just like this site but i can put up multiple pictures everyone can sign the guestbook and at the end when Chloe is done with this journey in her life i can get a copy of the blog including the journal, guestbook and pictures bound in a hard copy book which is wonderful.
Here is the blog: http://www.caringbridge.org/visit/updatesonchloe/journal
You might get notice a couple of time. I apologize because I will be sending out e-mails of the change as well.
I would love to see everyone sign the guestbook so when Chloe grows up and sees her book she can see all the love support everyone has given to us... thanks so much to everyone!!!
Thursday, September 29, 2011
Thursday, September 15, 2011
Bands playing for Chloe this Weekend
I just wanted to say thank you so much to everyone for their love and support. We could not get through this horrific time with out all of you. I can't say thank you enough. As many of you know, Travis has been in various bands forever and some of his old band friends wanted to put a concert together for Chloe. It is going to be this weekend at Monirae's in Pennellville. It is $5 to get in. Malachai, Bleed the Soul, 10 to midnight and last call will be playing. They are going to have a 50/50 for Chloe and there will be some merchandise for sale (bracelets and ribbons)...
Just wanted to spread the word and say thank you to everyone that put this together for Chloe!!!
Link to event is below:
http://www.facebook.com/event.php?eid=252838901416194
Just wanted to spread the word and say thank you to everyone that put this together for Chloe!!!
Link to event is below:
http://www.facebook.com/event.php?eid=252838901416194
Friday, September 2, 2011
Update from Our Trip this Week
We headed back to Philly Tuesday and Chloe had her EUA at 7am Wednesday morning. I was a nervous reck the whole time she was in getting it done. Dr. Shield's came out and spoke to us and said everything looks good, no detached retina (thank goodness). So this was a very happy trip to Philly. Dr. Shield's says all of the tumors seem to be stable and no new seeds so Chloe is doing well!! We stopped by CHOP as well while we were down to give Dr. Leahey Chloe's MRI. Dr. Leahey is on vacation this week so as soon as she gets back we should be getting a call with the results of that as well.. all in all a good week.
Again thanks for all the prayers we truly appreciate everyone of them!!!
Again thanks for all the prayers we truly appreciate everyone of them!!!
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