Round 2 Begins next week...

We are heading to Philly again April 5th for our 2nd round of treatments. We will leave the night of the 5th and her chryo treatment will be in the morning of the 6th. Unfortunately our insurance company is not being very friendly and refuses to let her get her treatment done by the specialists that actually know what is going on with my baby.. so we have to go to Philly for the chryo treatment (because this procedure is done only in 3 places in the US and Philly is the closest to us) and then we have to drive immediately back so we can get her chemo done here in Syracuse. The specialist in Philly has to send the doctor here the treatment plan and how to administer what Chloe needs which does not make me happy that we have to have someone that does not specialize in Retinoblastoma administer the chemo treatments. On top of that the last chryo treatment did not go very well. Chloe stopped breathing and then was screaming in pain after and had to get morphin from the onocologist. So if we are traveling back this time that means she won't be able to have morphin if she is in pain again... so frustrating ... insurance stinks and doesn't care about the individual. They are making a difficult situation even worse... thanks New York State!!