Ok well this time has not been to bad ... Chloe has not gotten sick at all and her mood is fairly good for what she goes through here. We went to her EUA yesterday which our appointment was at 10am and we never left Will's Eye until 3pm.. because of that we had to rush over to CHOP in order for them to still have time yesterday to get her 1st day of chemo started but we made it!
At Will's Dr. Shield told us that the tumors in her right eye are not shrinking any more and she thinks there at the size they will always remain she believes and the tumor is about 3cm from the central vision but she feels pretty good saying that she will more than likely have 20/20 in the right eye... they did discover a new seed growing in her left eye and they did cryo treatment on it, the fluid has decreased a lot since last treatment as well in the left eye which is good.. Dr. Shield's told us that she believes Chloe will be able to see out of the top half of her eye in the left. I also asked the question this time of the likely hood of after the last treatment of new seeds coming back she told us 1 in 5 chance so it is likely that she may have more seeds but hopefully they will catch them before they are to large or to many to laser out... Dr. Shield's said they will laser up to 10 new seeds at a time any more than that she will have to discuss other procedures...we will still come down every 6 weeks or so for an EUA even after cancer so that she can catch the seeds if new ones form... so needless to say we have a long road ahead still and those days of EUA's will be very difficult ones for us but everyone has been so great in supporting us..
We have met another couple from Utica, NY while down here and exchanged information so we could keep in touch... we wish them the best of luck as well... definetly nice to know people that are going through the same things you are... this trip has been extremely overwhelming for me for some reason.. not that anything has gone wrong just really could use a vacation this year LOL ... that's not happening with the time i have taken off for the travel back and forth from Philly but me being tired and overwhelmed i would do a thousand times more to help my baby girl.. she is amazing :)
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